Cystic Fibrosis Week

This week (9th – 15th May) is #CFWeek

It’s a week to spread the word about CF and to help people understand what the disease really does. On Twitter, the CF Trust are using the week to explain the research that is taking place into CF.

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Stories such as the following demonstrate why there needs to be more awareness of CF, as well as other ‘invisible illnesses’.

A young woman with CF parked in a disabled space as she had just undergone a double lung transplant, but when she left the car and walked away, a stranger felt it was okay to leave a passive aggressive note on her car.

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Of course this stranger wasn’t to know that the driver had just had a double lung transplant, but she should have considered that not all disabilities are visible. This goes for CF and many others. It’s about time the world became more knowledgable and this is what CF Week aims to achieve.


Take a look at the Twitter hashtag #notjustlungs to get an idea of all the other things effects CF has on the body and the sufferer.

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It’s not just the naive individuals either, the NHS have recently classified CF as ‘specialist respiratory’, when sometimes, the lungs aren’t even causing the worse effects. I would have thought with all the assistance we need from the NHS, they would have known better than to class us simply within respiratory.

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Hopefully, throughout this week, more people will begin to understand more about CF and what it means for the sufferers and families.

 

// Beth

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