Since my last blog post, it seems like quite a lot has changed. Firstly, it's now official that I am a 'vulnerable' person and I've been recommended to stay inside for up to 12 weeks. I've also been added to the Government/NHS's Coronavirus text service (which is offering a wealth of handy advice such as... Continue Reading →
It's not often that I get frustrated with my condition. There have been times in the past when it would bother me a lot more: times when I was in and out of hospital, missing school and unable to attend plans on weekends; coughing pretty much 24/7 and not getting much sleep because of it;... Continue Reading →
At 4pm in London, you’ll find me sat at my desk on the fifth floor of an old biscuit factory-turned-photography studio, hunched over a radiator on wheels while the sun is setting outside. A month ago I was sitting on a boat under a clear blue sky touring an immense Floridian lake surrounded by mansions... Continue Reading →
It's time to talk about someone (something) close to my heart. Literally. After 10 years, hundreds of punctures and many, many, many hospital admissions, my port-a-cath (Portricia) has passed away. For those who don't know, a Port is a little disc connected to a tube and inserted under the skin on the chest to provide... Continue Reading →
It's not often that I come across a book that includes a Cystic Fibrosis storyline. In fact, I've never come across a book that even mentions it. Unless you have the condition, it would be very difficult to write about as it can be quite complicated and therefore hard to understand what it's like to... Continue Reading →
About a decade ago, I was really ill. The symptoms of Cystic Fibrosis had reached severe levels. My lungs were failing, and I was malnourished and underweight. I was admitted to hospital at least 5 times a year, for 2-3 weeks at a time. I hadn't been admitted much before that and I was scared.... Continue Reading →
It's less than a week untilI take off on my 3 month world wide trip! I'm nervous and excited and I can't believe it's come around so quickly! (How are we nearly 2 whole months into 2017 already?) When I first shared the idea of travelling with my CF team, they were so excited for me and really... Continue Reading →
Earlier this week, Olivia Newton-John made news headlines for saying that she was grateful to have fought breast cancer. That statement, understandably, shocked many people. Cancer is a horrible, evil thing that effects every single person in some way - whether it's losing someone, supporting someone who has lost someone or battling it themselves. For someone... Continue Reading →
You may know by now that Cystic Fibrosis affects the lungs. This is correct, but you should know that the disease is not just a lung disease. From my previous posts you may have realised that my liver and digestive system (thus, height and weight) are also affected quite badly. The CF Trust are now working hard to promote... Continue Reading →
As I have definitely mentioned on this blog before, I made a magazine about Cystic Fibrosis for my dissertation. As a young person with CF, I knew there was little information out there which specifically targeted young people. I found this gap in the market and created an idea which I then designed into a... Continue Reading →
Bethany Jay 