It's less than a week untilI take off on my 3 month world wide trip! I'm nervous and excited and I can't believe it's come around so quickly! (How are we nearly 2 whole months into 2017 already?) When I first shared the idea of travelling with my CF team, they were so excited for me and really … Continue reading Travelling the world with Cystic Fibrosis – Tips!
Earlier this week, Olivia Newton-John made news headlines for saying that she was grateful to have fought breast cancer. That statement, understandably, shocked many people. Cancer is a horrible, evil thing that effects every single person in some way - whether it's losing someone, supporting someone who has lost someone or battling it themselves. For someone … Continue reading Why I appreciate my illness
You may know by now that Cystic Fibrosis affects the lungs. This is correct, but you should know that the disease is not just a lung disease. From my previous posts you may have realised that my liver and digestive system (thus, height and weight) are also affected quite badly. The CF Trust are now working hard to promote … Continue reading Things you may not know about Cystic Fibrosis
As I have definitely mentioned on this blog before, I made a magazine about Cystic Fibrosis for my dissertation. As a young person with CF, I knew there was little information out there which specifically targeted young people. I found this gap in the market and created an idea which I then designed into a … Continue reading Loungs
This week (9th - 15th May) is #CFWeek It's a week to spread the word about CF and to help people understand what the disease really does. On Twitter, the CF Trust are using the week to explain the research that is taking place into CF. Stories such as the following demonstrate why there needs to be … Continue reading Cystic Fibrosis Week
Hello everyone! I am currently working on my dissertation, which is my final project and a huge part of my degree. As part of my pre-production, I need to carry out some market research to see if my final product (a magazine) will be feasible and necessary. If you have Cystic Fibrosis and are aged … Continue reading Can you spare a minute?
So this isn't something I'd usually write about, but I suppose it's good to get it out somehow. Today, I cried. Quite a lot and quite continuously. I felt it coming and I couldn't stop it. I couldn't stop it when I started and I couldn't stop it the second or the third time either. … Continue reading It’s Okay not to be Okay
This month has already been busy; I am now at home for the summer as all assignments have finished and I've had provisional grades back! They shouldn't change and as long as they don't, they're looking fairly good! Being at home means a few things - work and appointments. It's that time to replenish my … Continue reading June Update
I spend a lot of time on social media, I'm not going to deny it, but lately I've seen so much being posted about people's conditions and I can't help but find myself thinking 'is there nothing else you want to talk about'? https://twitter.com/BSpparks/status/541009021709594624 Believe me, I am sympathetic to everyone who suffers from something, … Continue reading Identity – Be more than your condition.
This week (7-13th July) is National Transplant Week and the world has taken to social media to join in with the campaign. #SpellItOut encourages people to spell out their decision about organ donation in a creative way and upload the picture to the website or another social media site. The idea is to make the … Continue reading Organ Donation